Our Crowdfunding Groups
Our 3-year-old daughter, Olivia, was diagnosed with a very rare autoimmune disease called Rasmussen's Encephalitis in March of 2019. She suddenly started having seizures that February and it escalated to 200-300 a day within days. This particular disease attacks one side of the brain and only affects 2.4 in 10 million children. Being so rare, it is still much of a mystery to the medical community. The only current “cure” is a procedure called a hemispherectomy, essentially eliminating the affected side of the brain.
On March 25th, Olivia had little choice but to undergo the procedure to remove/ disconnect the right side of her brain. She is now well into recovery and her outcome is amazing, although her life will be changed forever. We are eternally grateful to Dr. Fallah and the whole UCLA team for saving our daughter's life. Dr. Fallah is passionate about his work and his research on this particular disease to find a reason and cure. With Rasmussen's Encephalitis being so rare, we want to bring awareness to the disease in hopes that one day there will be an alternate cure. Our hope is that this funding will find answers so other children/families won’t have to go through such a drastic surgery. This means the world to our family and many others, so any little bit of support helps. Thank you so much!
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